Ownership, Control, Access, and Possession (OCAP) or Self-Determination Applied to Research: A Critical Analysis of Contemporary First Nations Research and Some Options for First Nations Communities

The principles of ownership, control, access and possession (OCAP) crystalise themes long advocated by First Nations in Canada. Coined by the Steering Committee of the First Nations Regional Longitudinal Health Survey, the principles are discussed as an expression of self-determination in research. The key notions outlined in this paper relate to the collective ownership of group information; First Nations control over research and information; First Nations’ management of access to their data and physical possession of the data.

ALL ISSUES OF RESEARCH FOR SEX WORK CAN BE FOUND HERE.

Table of Contents

Ethical dilemmas in sex work research – S. Wahab and L. Sloan - 3

Alternate ethics, or: Telling lies to researchers – L. Agustín - 6

Collaborative research-community partnerships: The CAL-PEP case - 8

From subjects to partners: Experience of a project in Rio de Janeiro, Brazil – P. Longo - 9

The Tenofovir trial controversy in Cambodia. Can a trial be considered ethical if there is no long-term post-trial care? – Kao Tha et al - 10

Hijras in sex work face discrimination in the Indian health-care system – V. Chakrapani, P. Babu and T. Ebenezer - 12

This report is the result of a year’s work of the Experts Group on Trafficking in Human Beings. The main assignment of the Experts Group is to contribute to the translation of the Brussels Declaration into practice, in particular by submitting a report to the European Commission with concrete proposals on the implementation of the recommendations of the Brussels Declaration.